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Author Topic: CFR 2016 - post up pics, videos, carnage, stories  (Read 10718 times)

Offline cru9

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Re: CFR 2016 - post up pics, videos, carnage, stories
« Reply #48 on: September 06, 2016, 10:12:21 AM »
Have dates been announced for 2017?
Not yet. We are working on it now and hope to release in a few days


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Bobby

Offline DOUG

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Re: CFR 2016 - post up pics, videos, carnage, stories
« Reply #49 on: September 06, 2016, 12:00:44 PM »
We pray for a cure.  What does the doctor say about the methods he is trying, and does he have more to try?

Offline cru9

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Re: CFR 2016 - post up pics, videos, carnage, stories
« Reply #50 on: September 06, 2016, 12:06:02 PM »
We pray for a cure.  What does the doctor say about the methods he is trying, and does he have more to try?
Reid is waiting for the call anytime for the second procedure which is a type of skin cell transplant. Dr Tolar has pretty much dedicated his life to finding a cure for this disease. He is a brilliant man and has several methods he wants to try but the FDA won't allow yet.


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Bobby

Offline cru9

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Re: CFR 2016 - post up pics, videos, carnage, stories
« Reply #51 on: September 06, 2016, 12:07:36 PM »
EB just took a 7 year old boy last week I believe. His EB turned in to a very aggressive skin cancer which is very common in this type disease.


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Bobby

Offline cru9

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Re: CFR 2016 - post up pics, videos, carnage, stories
« Reply #52 on: September 23, 2016, 07:42:05 PM »
Reid's new wheels


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Bobby

Offline clark123456

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Re: CFR 2016 - post up pics, videos, carnage, stories
« Reply #53 on: September 23, 2016, 09:26:26 PM »
Reid's new wheels


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Freaking smart...and snazzy!
Clark
1998 TJ Sahara

Thanks, Dandelion!

 

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